FSHD Global Research Foundation Limited
FSHD Global Research Foundation Limited is a large-scale charity established in 2007. Their main activity is registered as grant-making activities primarily serving general community in australia.
The FSHD Global Research Foundation not only leads the not-for-profit sector for its transparency and accountability with donations, it remains true to its public statement: 100% of all cash tax deductible donations have been allocated to current or future medical research investments, grants and education whilst the Foundations operations are supported by non-tax deductible sponsorship's. With no government support, this unique charity model offers great transparency and accountability in allowing us to fulfil the Foundation's mission. It has also changed the Facioscapulohumeral Muscular Dystrophy (FSHD) research space since its inception in 2007. In the short space of 11 years, the Foundation has raised over $10.7 million in donations alone which have funded 48 research projects in 10 countries. The Foundations aim is to increase awareness and fund national and international researchers to undertake both clinical and basic research projects that can lead to identifying the cause and a future cure for FSHD. We also aim to increase the knowledge and awareness of FSHD among medical practitioners, researchers, patients, donors and the general community. FSHD Global invests directly into well managed Biotechs that have a major focus on technology which has the prospect of leading to clinical trials in patients with any Muscular Dystrophy that can: Grow muscle cells in human tissue Improve muscle wellness Develop wearable technology to assist in movement 2019 was another very successful year with revenue of $1,468,674 raised across both tax deductible and non-tax deductible fundraising. As we approach the 12th financial year the Foundation continues to be committed to its mission to find a cure for FSHD within five years. FSHD is a disease that affects an estimate of one million people globally. It is caused by an over expression of a protein called DUX4, which is toxic to muscle. The true prevalence of this disease is still unknown, due to poor diagnostics and misdiagnosis, many people live unaware they carry the genetic gene, at risk of passing down generations.
Who They Help
- General community in Australia
Total employee expenses: $312,858 (21% of revenue).
Average full-time equivalent salary: $156,429.
Revenue vs Expenses
FSHD Global Research Foundation Limited has seen an average annual growth of 9% in revenue versus a 3% p.a. increase in expenses. This can be a good sign of financial health.
Grants given out in 2019 for use within Australia: $116,564
Grants given out in 2019 for use outside of Australia: $572,348
Assets vs Liabilities
As of 2019, FSHD Global Research Foundation Limited has a debt-to-equity (D/E) ratio of 0.01. This is considered safer than average within the charity space.
Sources of Revenue
Sources of Expense
- David Mackay
- Malcolm Beville
- Nigel Virgo
- Bechara Shamieh
- Peter Ratcliffe
- Ross Nicholas
- OtherPossibly also represents: Wishes by Wyndham Fund.
- Beverly Baker
- Glenn Willis
- DirectorPossibly also represents: The Trustee For Big Brothers Big Sisters Australia Foundation.
- Andrew Rigney
- Natalie Pidgeon
- Scott Baker
- Barry Robinson
- Natalie Moss
- Bill Moss
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- Registration Status
- Charity is registered.
- DGR Status
Donations can be claimed as a tax deduction.
- Office Address
L 15 77 Castlereagh St
- Operating States
- VIC TAS NSW QLD WA SA ACT NT
- Operating Countries
- Canada, France, Germany, Italy, Netherlands, New Zealand, Spain, Israel, United States
- Entity Type
Australian Public Company
A company is a non-individual client type. Company is defined to include a body corporate and any other unincorporated association or body of persons but does not include a partnership or a non-entity joint venture. Health Promotion Charity
- fund raising, nsw, education, research, sydney, grants, donations, not for profit, donation, medical research, tax, tax deductible